plaxo

A high school friend asked me to sign up for plaxo not sure exactly what it is but I figure that connecting with old friends is always a good idea. I received my masters of social work in 1996 after my children were grown and unfortunatley became disabled and have been fighting for government acknowledgement. I have a disorder known as Interstitial Cystitis *which is undergoing a name change that I don't agree with but am in the minority. I spent my whole life being to being told I was imagining my symptoms until my ovary burst one and suddenly I was told hey you really are sick sorry and yet still have have an uphill battle getting people to believe that yes this is an incurable disease in 1996 my best friend committed suicice after being diagnosed with this disease and still was told it was all in our heads. Only recently has it begun to be recognized as an actually disorder realted to auto immune disorders like fibromyable, lupus, asthma,etc.
Namast.
Jo

The Days are Long The Nights are Longer

ok I wrote this once and then deleted it and feel like a royal idiot. It's been a long Summer more at night They seemed to go so very slow. My gallbladder had to be removed in the beginning of August. I was shocked it took 2 hospitalizations for that to happen. Then last week I was back in hosp again. With the health care crisis I am blessed to have insurance but oh boy the copay each time $100 for the ER and $100 for each admit that doesn't begin to cover the radiologist who read the ex-rays etc etc. Then I broke a tooth and even with insurance it'll cost me almost $2000. Getting sleepy finally Namaste,
JoDee

The Voice that Saved a generation

I am so glad that I got my ipod the speakers, now there are more ways to hear the god of music Josh Groban. So I guess that makes me a grobanite living in grobania following a wiccan heart. Iam never sure if anyone reads this or is it only me. Which is fine because it helps with my journalling (is that a word)
I am breathing better and the pain is started to go away and with this gallbladder missing I am supposed to go back to the diet that put me in this position in the first place. But weird thing is that my bladder likes this new diet, I've sorta put myself on an easy to digest food plan. I know that I need to go back to the surgeon for a look see, since When I was in the hospital (the first time)she came by to tell me I needed to be seen. Especially with the fact that I blew an internal stitch some 4 odd years out.

Home From the Hospital

It seems as though I have no official list of people who read my blog, so this would be a good place to put down my thoughts when I get into trouble writing by hand. Which is the preferred method for my journal. But I'll just cut and paste inside and then print it all out and glue it to the book or use as an alternate method of adding to journal and print the stuff up and put them together as they're very important to me.

So begins this journal entry. Came home from the hospital last night after they gave me a shot of demerol and I had a little something to eat. Marc was going to get my pain medication this morning and did in fact go out to the store when he came back from Aunt Zel's breakfast. There are no scoring marks on the pill, but I guess that just because they filled with generic. I have a pill splitter so will see how that works out. If not I'll have to take it whole and see how that works.

I'm glad I finally figured out how to log on to this journal without all the confusion, so many accounts and passwords to remember and frustration on my part. My neck is spasming so I'm going to lay down for a little while.

Getting Ready For Surgery

The night Before..... Yes I am nervous the gallbladder is coming out ok w/that but will they be able to take it out laproscopically with min. of trauma to the body. If they run into problems because I'm different inside because of the gastric bypass in '05 - They'll open me up all the way - that'll keep me in the hospital for a week. so I'm putting it out there in the universe that goddess watch over me and keep me safe.

Missing my Josh Blog

I just got my 6 year patch from FOJG.com Josh Groban as I renewed my membership. They are revamping the website so I can't get into the blog area. Ugh how frustrating. I can't wait for the new album and the new direction he is going in. I doubt he could sing anything that I wouldn't love. I can't wait for our next grobie meeting. It'll probably be around christmas. We collect toys and the marines come to the party and pick them up. I heard last year they had to come back the next day because we had so much stuff. We try and not just be Grobanites but work on charities. Josh has his foundation and we raise money for that to help clean water in Africa and here at home for the kids. 8/16/09 Sunday

Fibromyalgia

Been reading up on it on the web and in a book called Prescriptions for Natural Healing which is definitely out of date no information in L-Threonine and Theanine there is a new edition out. I saw it at the local Russian Pharmacy for only $22. Tomorrow I'll go check it out and see if it mentions the new amino acids I've been reading about on the web. I can't try and the amino acids or DHEA until after the operation on the 20th. It's weird vitamins and herbs and nutritional suppliments have to be stopped a week before, I guess they don't understand and think it may interfere with the gallbladder. I can continue all 15 medications how bizarre is that.