Monday, September 14, 2009

plaxo

A high school friend asked me to sign up for plaxo not sure exactly what it is but I figure that connecting with old friends is always a good idea. I received my masters of social work in 1996 after my children were grown and unfortunatley became disabled and have been fighting for government acknowledgement. I have a disorder known as Interstitial Cystitis *which is undergoing a name change that I don't agree with but am in the minority. I spent my whole life being to being told I was imagining my symptoms until my ovary burst one and suddenly I was told hey you really are sick sorry and yet still have have an uphill battle getting people to believe that yes this is an incurable disease in 1996 my best friend committed suicice after being diagnosed with this disease and still was told it was all in our heads. Only recently has it begun to be recognized as an actually disorder realted to auto immune disorders like fibromyable, lupus, asthma,etc.
Namast.
Jo

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