Monday, September 14, 2009

plaxo

A high school friend asked me to sign up for plaxo not sure exactly what it is but I figure that connecting with old friends is always a good idea. I received my masters of social work in 1996 after my children were grown and unfortunatley became disabled and have been fighting for government acknowledgement. I have a disorder known as Interstitial Cystitis *which is undergoing a name change that I don't agree with but am in the minority. I spent my whole life being to being told I was imagining my symptoms until my ovary burst one and suddenly I was told hey you really are sick sorry and yet still have have an uphill battle getting people to believe that yes this is an incurable disease in 1996 my best friend committed suicice after being diagnosed with this disease and still was told it was all in our heads. Only recently has it begun to be recognized as an actually disorder realted to auto immune disorders like fibromyable, lupus, asthma,etc.
Namast.
Jo

Saturday, September 12, 2009

The Days are Long The Nights are Longer

ok I wrote this once and then deleted it and feel like a royal idiot. It's been a long Summer more at night They seemed to go so very slow. My gallbladder had to be removed in the beginning of August. I was shocked it took 2 hospitalizations for that to happen. Then last week I was back in hosp again. With the health care crisis I am blessed to have insurance but oh boy the copay each time $100 for the ER and $100 for each admit that doesn't begin to cover the radiologist who read the ex-rays etc etc. Then I broke a tooth and even with insurance it'll cost me almost $2000. Getting sleepy finally Namaste,
JoDee